When you think back to being a child, what were your dreams? Where did you want to be by the time you were your current age? If you look at your life now, does it match up? The chances are that, no, it doesn’t. That may because you changed your mind. It might be because of a missed opportunity. Or maybe it’s because of a lack of funds. But for me and others in similar situations? It’s beyond our control. Illness has taken us down a different path. It’s bumpy, muddy and downright treacherous. But we have no choice but to keep following it. Getting ill at 17 and thinking that I’ll be 26 in June? Yeah that’s pretty scary. I still live at home. I’m still reliant on others. I’m still unable to work or study. This sort of scenario would never have crossed my mind as a teenager, let alone as a child. It wouldn’t have been on my radar. You think about getting a job, falling in love, going into space or being a princess. You don’t think about being housebound, wheelchair bound or all the doctor’s appointments.
But at the end of it all, it is what it is. I may not have the career I wanted, but I’ve realised that’s not important. I’ve found my creativity and my love of expressing myself. I may not live independently, but I’ve got a loving and supportive home. I may not be where I wanted to be as a child, but I’ve seen the oh so many options that I didn’t perceive before. And most of all, I’ve found myself. I’ve discovered what I truly value + what I really want from life.
And in a strange way, I genuinely thank my illness for that